Entity

During our lives, some of us will learn to share our daily lives with a disease, some of which are invisible. Here, we focus on pulmonary arterial hypertension (PAH), a rare progressive respiratory disease characterized by dangerously high blood pressure in the pulmonary arteries. The main symptom is breathlessness, and if the disease is not treated, heart failure can be fatal. An infusion pump injects treatment to reduce her symptoms and the spread of the disease.

All of the sounds heard in this film seem muffled, with the exception of one regular sound which seems very clear. This sound comes from the pump itself, every two minutes, like an entity still in development, claiming its existence, and whose all ambient sounds are perceived from its interior. Thus, through these small everyday scenes, we can question the fact that even a single person can potentially live a collective experience.

Entity is a visual essay and documentary, which aims to provide a different vision of what people who live with an invisible disease may encounter.

Film direction and photography by Christophe Boussamba